For Jo Ryan raising awareness about Fragile X Syndrome has become a life long mission.
When her son was diagnosed with Fragile X about the wasn't a good understanding of the condition in the community.
"My son is 30 and when he was diagnosed nobody had a clue what Fragile X really was, especially me, and so it's been a really tough road," Ms Ryan said.
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The genetic condition can cause intellectual or learning disabilities, coordination difficulties, anxiety, ADHD, autistic-like behaviours and mood instability among other things.
"My son has the whole works, he has autism, ADHD, Asperger's and a little bit of bipolar," Ms Ryan said.
She said her goal had been to get him out into society so people could get to know him.
"Since NDIS has come in and there is more people with disabilities getting out and about the community is so much more understanding," Ms Ryan said.
Kim Preece was diagnosed with the adult version of Fragile X earlier this year.
Her husband Michael said it was important to continue to raise awareness about the condition.
Both of their children have autism as a result of carrying the Fragile X gene.
"We've had friends tell us that the kids just need a good smack, but it's not just a smack," he said.
Mrs Preece said having the extra awareness helped when she was hospitalised due to her condition earlier this year.
Next Wednesday, July 22, Launceston town hall will light up orange in order to raise awareness for the condition.
"Usually we fund raise as well but this year we have gone against that ... all we can do is beat our drum about awareness," Ms Ryan.
For more information about Fragile X visit https://www.fragilex.org.au/
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