TRYSTAN Stephens is a strong little fighter.
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While the Ulverstone 6-year-old is a few years off being the fireman he dresses up as, he has fought through much more than others his age.
Trystan was 10 months old when he lost his father to cancer.
Two-and-a-half years later, the bubbly boy was diagnosed with acute lymphoblastic leukaemia, and he has been fighting ever since.
Mum Jodi Revell said the August day when he was diagnosed was horrific.
‘‘I took him to the doctor at 10am,’’ Ms Revell said.
‘‘[The doctor] said we need blood tests now and then he rang me back in the afternoon and said, ‘don’t panic, but there’s an ambulance on the way. You’re going to hospital - he’s got leukaemia’.
‘‘To bring up cancer again [after losing his father] I immediately thought Trystan was going to die.
‘‘It was absolutely crushing.’’
Ms Revell and Trystan were flown to the Royal Hobart Hospital the next morning and were meant to stay two to six weeks while doctors got Trystan into remission.
‘‘They couldn’t get him into remission so we ended up spending 12 months down there, just me and him,’’ Ms Revell said.
It was a hard year for Trystan’s four siblings, who had to stay with their nans and eldest sibling.
Ms Revell said Trystan was now reunited with his siblings, but his blood levels were still up and down.
‘‘He’s handling it really well and he’s finally in school ... but every day he’ll be sitting there and I’ll be looking for the dots that I’ve seen on him before,’’ she said.
"I look for bruises," she said. "Because it took him so long to get into remission he is at more of a risk of relapse.
"It makes you feel sick everyday, so I don't say he's getting better, I say he's doing okay."
Trystan still travels to Launceston once a month for treatment.
Most months he received chemotherapy through a port, but every three months he has to go into theatre and have chemotherapy up the spine with a lumbar puncture.
Taking tables is also a daily routine.
Ms Revell said she was so thankful that Camp Quality could put on regular camps for her and her family.
"I'm a widow so there's not a lot of support around, so it's so much appreciated that they (the children) can come here with these amazing volunteers," she said.
"The kids love it, they love a break from mum and they have so much fun."