The lights are kept dim at the five-month-old's Newnham home, and he is rarely taken outside without his sunglasses.

Logan's father Shaun Richardson said his son was born with blepharophimosis ptosis epicanthus inversus syndrome (BPES), which means he can barely open his eyes, and is sensitive to light.

He's believed to be one of four Tasmanians with the rare genetic condition.

Logan's mother Melanie Rhodes said she knew something was wrong as soon as Logan was born, but doctors were puzzled by his appearance.

"My GP, he's been a doctor for some time, and when he looked in his carrier and said, `I've never seen anything like it', that's when we sort of started to really worry," Ms Rhodes said.

"We flew to Melbourne at five weeks, and then we got a diagnosis."

Mr Richardson said they would fly back to Melbourne in September to see Logan's ophthalmologist and ocular plastic surgeon for a check-up and to discuss a surgery that could help open his eyes.

He said Logan's eyesight behind the closed eyelids was fine, but there were concerns it could be deteriorating.

In an unrelated health issue, Logan was born with two-and-a- half kidneys.

"So we go to Hobart at the start of August to see a renal specialist, because they don't know what's going on," Mr Richardson said.

Mr Richardson said Logan's health problems had taken a financial toll, as BPES wasn't recognised for a health care card or carers' payment.

But he said their friends and family had rallied around them, and an online fund-raiser has so far raised $1065.

A trivia event at Archers Manor on September 6 will raise money for Logan's treatment. For more information visit https:/ /www.facebook. com/ Trivia4logan