Three years ago, Dallas Lawsen was born with a rare genetic disorder that doctors struggled to even name.
Dallas, who now lives in Sydney with her mother Jade, was born at the Launceston General Hospital without eyes, with brain defects, a hole in her heart and extremely low-muscle tone - a combination of symptoms medical professionals call ''deletion 14Q22''.
The most serious part of Dallas's condition is called anophthalmia, a chromosome deletion syndrome that left her without eyes.
Her father, Tate Winberg, of Beaconsfield, said his daughter now had regular physiotherapy to try to strengthen her muscles, so one day she might be able to walk with the assistance of a walking frame or guide dog.
Anophthalmia is rare enough; only a handful in 100,000 people might have any form of the condition.
But Dallas's combination of conditions is even rarer.
''Her condition is so rare they don't even have a name for it and there are only about 10 known cases in the world,'' Mr Winberg said.
''She is progressing slowly through her life.
''She is three years old now, but she doesn't crawl or talk.''
Last Sunday, Mr Winberg held a family fun golf day at the Exeter Golf Club to raise money for a trust fund for Dallas, to make her future as easy as possible.
More than 80 people played in the ambrose competition and many more bought tickets in the raffle full of donated items - raising more than $5800.
''I thought it would be a good way to get some money into a trust fund to help Dallas with her future, with any challenges that lay ahead,'' he said.
''The support has blown me away. I thought if I could raise anything over $1000, [it] would have been a good effort - I guess people have just got big hearts.
''The money will be for something she will need for her future, it will not be used for day-to-day life.
''It may be a walking frame or adapting a bathroom and making her house more friendly, because we don't know what her future is going to be like.''
Mr Winberg thanked everyone involved for their support and is still on the fund-raising campaign.
He is hoping to attract some more support from the wider Tasmanian community.
Anyone wanting to donate can call Mr Winberg on 0419 116 440 or email tatewinberg@ hotmail.com.